One woman's journey with Lyme

A little bit of background on me: I've always been an extrovert. An athlete. A wild spirit, free to roam. Outdoorsy type, rock climbing in Colorado, hiking in the Carolinas, California, trekking all over the woods in Florida. That was my life.
That is still my life on the "good days." Yes, now I am one of those people that have good days and bad days.
I have Lyme disease.
I cannot be certain when exactly I contracted Lyme. Symptoms started when I lived in Tampa (2010-2012).
I never had the rash. I do remember what we thought were "flare ups of mono," then "stress from grad school." I was even tested for MS. I'd get weird neuropathy and they chalked it up to neck and back injuries from a car accident of 2007...
Fast forward to the last 12 months... memory fog, trouble finding my words, intense pain, sometimes a burning pain in my legs, sometimes arthritic... and the fatigue. My God, the fatigue.
There were mentions of Chronic Fatigue, sort of arthritis, autoimmune diseases, maybe complications from my endometriosis. Lupus, leukemia, then the third "L"... they finally tested me for Lyme. It came back positive.
I have Lyme Disease.
I've told a handful of people and most reactions are "oh my God, you have Lyme??" like its a death sentence, and there are the few eye rolls, shrugging it off like it's nothing, or worse- those who say nothing at all. Who make you feel completely invalidated as a human being.
Most of my downtime this year and last has consisted of naps or resting. Some days, I will crash for 48 hours. I haven't been able to hold a fulltime job since September of 2013.
I was just diagnosed. It is almost June of 2015.
I begin treatment July 1. I've gone through every symptom and feel this relief that I have an answer, yet regret that I didn't think to get tested sooner. Not to mention fear of the stigma that comes with this diagnosis.
We already know I am late stage. The emotional, neurological, and physical symptoms have all set in. How well I will respond to treatment is to be determined.
I do know I am continuing with life as close to usual as possible. I go to the gym early mornings on the days that my legs arent on fire or numb or arthritic. I work.
I am looking to relocate, specifically to a bigger city with more specialists. And I'm holding on to friendships where I can, but sad to say there aren't many left. I do tons of behavioral therapy to help with the emotions and interpersonal interactions.
I've Been told I "jack people around" schedule wise, I "flake out," I'm "unreliable," when I really just want to scream "I AM SICK. EITHER BE SUPPORTIVE OR STAY AWAY. PERIOD"
Your choice.